Tuesday, January 13, 2009
Bad Headache Day 3 2009
The Headache Commands and I Listen
Went to the headache specialist in KC today. She was supposed to have requested my hospital records but of course none where there, but I was prepared and had a copy with me. Ha! Stunted Beauracracy! I was ready for you!
A lot of good it did me. Basically I was told what I already knew: there is no alternative medication for The Headache - the list has been exhausted unless I want to go on steroids again. They only partially helped The Headache and I ended up on insulin for awhile and my pancreas revolted AND I gained 25 pounds so not that useful. I have not had a headache free day since December 2007 and am already tired of this Thing.
The pain going off indomethacin was excruciating - a migraine at a 10 for hours and hours - and ended up with dilaudid to knock me out, and I don't like that - especially the pain part. My specialist mentioned occipital nerve stimulators and that there has been some advances in pain control with these...
I was given the name of a physician Steven Wilkinson in Kansas City that implants occipital nerve stimulators for headache control with some success. I will talk with my insurance company and see what they say - if it's experimental I'll bet they won't pay....