Sunday, October 31, 2010

Angioedema Hurts

Ouchy and Grouchy

I forget between bouts how much angioedema can hurt.  It is deep seering down to the bone type of pain, and at the same time burning through my skin kind of pain.  It hurts to move, it hurts to sit, it hurts to type, it hurts to walk.  This is going on day four of this bout.  Hoping the pain lessens.

I have not complained but I did go home early from the client's yesterday. My boss I think realized how sick I look and went in early today but I don't have to be there for a little while yet so I could sleep in!  Yeah!!  I try very hard not to complain because it was my own choice to come when I didn't feel very well.  The pain yesterday was overwhelming and today is a teensy bit less but very bad.  I could take pain medication (I have it with me) but I will be non-functional if I do.

Ocassionally I am at the "shaking won't stop" stage of pain - was there most of yesterday, but it is coming and going today.  My legs are starting to stop swelling and my hands feel normal.  I have mild facial swelling which is not noticiable (thank heaven for small favors!!).  My red nose is still red.  sigh.   I can get my feet into a normal pair of shoes today, not my fat foot traveling shoes I have had to wear for the last couple of days.  Hoping this episode of angioedema will be gone soon!

Gonna get my stuff together and get ready for work.  Happy Halloween everyone!!!


  1. Does the pain never go away? Do you ever feel better?

  2. Oh, that sounds horrible, Emily.

    You may have heard this saying before - it always makes me giggle. 'When you think you've reached the end of your rope, just tie a knot & hang on!'

    I hope tomorrow brings less pain for you.

  3. Dear one I am so very sorry for your continued pain. Yes, Do you ever feel better? I know that you have written posts on having a good day, so I gather those days the pain is manageable. Blessings.

  4. Princess OEATS: Pain in one form or another is always there anymore. I do feel better some days and am very grateful when that happens. I am told I have a HIGH pain tolerance by my PCP but truthfully I feel like a wimp. I am able to ignore pain most days, but it seems when my cup o'pain is overfull every single extra drop of pain becomes more intense.

    In order to be able to function for work, I avoid taking the strong pain medication I have been prescribed. However, last night I finally took some oxycontin which took the pain down a notch from unbearable to barely bearable.

    I have a terrible fear of becoming allergic to the last few remaining pain medications I can take. Another reason I avoid taking them if I can.

    Emily: I am bummed but I did laugh at your end of the rope - thinking of the kitteh pictures where one is hanging on the knot!!! Thanks for the visual!!!

    The angioedema pain should be better each day as the swelling goes down!

    JBR: I DO have good days. Just not lately it seems. sigh. And I have been able to keep moving and keep doing this weekend but it took a great deal of will power and prayer.

    All: Hoping you have a great week this week, remember to vote! I was able to "prevote" instead of absentee voting!

  5. Just wanted to say thank you for your sweet comment about Brandy (back about two months ago).

    I'm sending feel good vibes your way, I hope you feel better soon :/


  6. wow, so sorry to know you have been in so much discomfort. I really hope some good pain free days are in the near future for you

  7. Kira: I could tell Brandy was well loved, and your tribute was very well written from the heart. A great puppy friend!

    Thanks so much for the good vibes. Your photography is very interesting!

    Just Me: I gave in and have been taking medication for the pain. My mind may not be as sharp but I am managing to go through the day without shaking constantly - although it is cold enough here for me to do that naturally!!!