When I hit the big four oh, I found that my body started to fall apart one piece at a time. My warranty had expired and there was No Extended Warranty available! This is the story of my struggle to keep it all together using spare parts and baling twine.
Saturday, September 4, 2010
A Hundred Miles Per Hour
I'm a fast talker. I grew up in Northwest Missouri and I guess we all had lots to say and little time to say it in. We were all fast talkers up there, you had to compete to be heard. I now live in Southwest Missouri and they are more southern in accent and are slower talkers with softer voices. Being a fast talker makes you seem pushy and agressive so I have learned over the last 20 years to pace myself.
On prednisone I seem to loose all control over verbal speed. I am talking at 100 miles per hour, super animated, and then all of a sudden I crash and burn, drained of energy until my next day's dose.
I have a Minnie Mouse annoying voice and depending on whether my angioedema affected my vocal cords too much I either drop down to a husky Marlene Dietrich range or accelerate to Spongebob Squarepants squeakiness. Today I was definitely Spongebob.
I have trouble sleeping anyway and prednisone makes it even worse. Had an hour and a half of sleep last night, came home a little early from work because the energy all burned out of me at around 3:30. Wasn't able to rest but at least the lip swelling and the sinus swelling have gone down. My ears and behind the ears are still not completely angioedema free, but hopefully tomorrow's dose of prednisone will calm it down. I'm still itchy but its much better than it was. The Headache is not happy today, but that is right on schedule so I am hoping my antihistamine triatholon I will be doing tonight will help with the added ouchiness.
I am very very tired tonight (second day in a row with very little sleep!) so I am hoping the antihistimines will help send me to dream land. I'm not so nervous about having my ability to breathe stopped while I am sleeping tonight. I have gone to bed and woken up in the morning completely covered with hives, so I am always afraid the angioedema might get worse at night also with no way to wake up and use my epipens. I get a little wheezy and it just ratchets up the old anxiety meter that prednisone gives me anyway. My blood sugar is running high, but not too badly high, it should drop as I drop the dosage of predinsone. Maybe if I take the cyclosporin it won't be as bad.
Tuesday I will be flying to Arizona and staying for a few days and I desparately want this episode of hives to be almost over if not completely over. Eating out is pure misery when you don't know what is going to start up The Hives, and to stay alert for the clients I can't take as many antihistimines as I really need to do. Oh well. Hoping maybe the icky gastrocrom will have kicked in by then!
Hoping everyone has a great Labor Day Weekend! Hope some of you are actually planning to do something fun! FUN! "F is for Friends that do stuff together, U is for You and me, N is for Anywhere and Anytime at all Down here in the Deep Blue Sea" Spongebob wisdom for us all, although I have been a bit Planktonish this week.