When I hit the big four oh, I found that my body started to fall apart one piece at a time. My warranty had expired and there was No Extended Warranty available! This is the story of my struggle to keep it all together using spare parts and baling twine.
Tuesday, September 14, 2010
Don't Feed Them After Midnight
Gremlins Are Hard to Get Rid Of
I'm Jinxed. I think my life is infested with Gremlins. I have a couple of good weeks, and then BLOOEY it all starts to blow up. I must have fed them after midnight.
Going off the prednisone, have been having trouble with shortness of breath since Saturday. Saw my regular PCP on Monday for my regular bloodwork - my lungs sound fine, no allergic asthma wheezing or gurgly crunchy sounds. Did have them run a lipase level (as long as they were doing bloodwork) because either I'm getting rebound angioedema (not inconceivable) from quitting the steroids or it could be The Belly and The Pancreas acting up from travel trauma.
Very difficult to breath this evening. With the pancreatitis my lungs sometimes lose their surfactant properties and the alveoli collapse in small areas. It's called atelectasis. It also gets worse because with chest pain it gets difficult to inhale, which is not good because you don't expand your lungs fully. If it gets worse I will go to the ER, but I am trying like heck not to go since I have to drive myself. My face is swelling somewhat, and I'm hiving on my back so maybe it is just the angioedema instead of the pancreas. I'm hurting all the way through my belly to my back and I find I am taking very shallow short breathes. Sloooow and eeeeasy is how I need to go. Am also getting some sharp ouchies in The Belly, so I need to just calm myself down and adjust my breathing properly.
Dr. Calm's nurse at the immunology office left voice mail for me today at home. I will call tomorrow. It's either good news - all my mastocytosis blood tests came back fine, or bad news - something didn't come back fine. If The Belly is acting up, my blood tests come back pretty abnormal so that could be the issue. My electrolytes get off, my calcium levels are wrong, and my liver enzymes go up in addition to elevated lipase/amylase when The Pancreas and The Belly are upset. Hoping for normal, normal, normal!
My little dachshund Augie was all cuddly today and kept wanting to smell my breath. He does this when my body chemistry is out of balance, not because I have smelly breath or very nice breath. I call him my pancreatitis dog, kind of like a diabetes dog or an epilepsy dog - he senses that something is not right.
I am getting tired of this cycle where I try to do normal activities and then I have to pay a couple of hundred dollars to some emergency room somewhere to keep working. I feel like I take two steps forward and one step back - at least I am make some forward progress....
Going to take some antihistamines and see if the breathing gets better. The Headache is trying to pick up momentum this evening too. Will adjust my electrical signal to see if that helps. Hoping for the best!