When I hit the big four oh, I found that my body started to fall apart one piece at a time. My warranty had expired and there was No Extended Warranty available! This is the story of my struggle to keep it all together using spare parts and baling twine.
Monday, May 24, 2010
Doctor SassyPants
We Have a Plan
Saw a new doctor today, the physiologist. I'm gonna nickname him Dr. SassyPants, because he's the cheerful joking kind of doc that gets down to brass tacks quickly but keeps it light. Doc SassyPants quickly decided that I didn't have facet joint arthritis problems, and a facet joint injection wouldn't help. Then I had to do some tricks like walk on my heels, tippy toe forward, and walk flat footed, all the while worrying that my paper exam shorts were going to fall around my ankles and trip me! Thank God I had on my granny underwear for modesty's sake.
For the exam (I guess because it's of the lower spine) they had me put on a pair of paper shorts that must have been made for Humpty Dumpty. They were so wide they wouldn't stay up, and so short in the seat that I couldn't get them pulled up to a decent height and the bottoms of the legs were below my knees. I'd like to know what sort of person they designed those things for - I just can't imagine anyone that wide with so short a straddle region and such long legs. I'm short and wide myself and I was lost in these things. They must only come in one size - HUGEMONGOUS.
I came out of the appointment with a plan of action: a script for a muscle relaxer to help my right piriformis muscle relax (I had to request a different med - the one Dr. SassyPants prescribed wasn't covered by my new insurance and was $300 a month! Waiting on the new script), a referral to pain management to be evaluated for a peripheral nerve stimulator for the pain, a referral to physical therapy for some help with my foot drop and weakness and the piriformis muscle problems, and a referral to a pelvic pain physical therapy group for the pudendal nerve issues. Per Dr. SassyPants if the muscle relaxer doesn't work, we will then try Botox injections in the Buttocks to get the piriformis muscle to relax.
I don't have much in the way of reflexes left in my knees and none in my ankles. I know my right leg is worse than my left, and the foot drop is worse on the right foot. Dr. SassyPants says that radiation induced lumbosacral plexopathy is the culprit and there really is no fixing it (as I suspected) but we can try and manage it. I did tell him that I was not sure if I wanted to pursue the pudendal nerve therapy as just about any touch against that nerve sets me into to a world of pain for about a month. I will go to the evaluation and decide after learning what their treatment plan is. As soon as I get my script for the muscle relaxer, I am to quit taking the Soma - which isn't doing an awful lot anyway.
I'm thinking the cane is going to be a permanent fixture in my life. Maybe I will treat myself to an antique cool cane - one with a sword in the handle or a drinking flask under the knob, or mother of pearl inlays with ebony accents.. or maybe I will get one with flames and skulls all over it. Or how about one of those English Hunting Sticks that turn into a portable seat?? Hmmm, I could have an entire wardrobe of canes! What a fashion accessory!
On the road tomorrow morning back out to some clients. Luckily I have a co-worker who is going to drive us - thank heavens for her help, because I don't think The Legs would be able to make it this time. I am coming back Wednesday, no stay overs this week as I don't believe I will be able to walk more than a couple of days the way The Legs are feeling tonight.
Called Cleveland Clinic, and I will go back there on June 24th, and will return at about the same time in July. I will have to pick up the electronic headache diary in June and take it back in July after updating it for a month - then I will be through!!! Hopefully the occipital stimulator results will get published and the device will get FDA approval for migraine headache pain relief. Too many people are suffering from intractable headaches that are like me - out of medication options.
Beanie the snake bit Boston terrier is doing really well. His foot is back to normal size and there doesn't seem to be any necrosis in the bite area. Woo Hoo!
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I agree about the disposable clothing. I am of ample hip width, to say the least, and they're always too big for me too. Surely they could afford a size assortment?!
ReplyDeleteShel:
ReplyDeleteMaybe they should design some that are like shrink wrap - you put them on, stand in front of a hair dryer and WahLah, instant correct size! Of course the risk of being burnt by hot shrink wrapping shorts is always there. Hmmmm. I guess I will wear the Humpty Dumpty ones instead.
LOL, butt botox!!
ReplyDeleteAhem, sorry. Back to grown-up land.
DEFINITELY get yourself a cool cane. Or get a plain one and decorate with stickers from all the places you go! I'm sort of jealous! :D
my dear cousin....
ReplyDeletei have pics to share and will be downloading them asap. as always, you are in my prayers and all of your family is, but i believe there is a special bond between us...you can really see the resemblence in these pics, gonna put them on FB...love you!
WNPP love what you said about shrink wrapping shorts. I had to chuckle on that one. Sending hugs to you dear one.
ReplyDeleteSteph: I was laughing about the Butt Botox myself, thinking what if I get a loopy butt like you have a loopy neck from the Botox? Numb cheeks?? A droopy seat?
ReplyDeleteLike the idea abou the stickers!
Shelah: Looking forward to the pictures my doppleganger cousin!
JBR: I coulda made a fortune with that idea, but I'm very generous and shared it with everyone!! :) Take Care!!