Saw my PCP today and agreed to try taking neurontin again for The Legs. This will be my third try with neurontin, the first two were flops. Instead of titrating up, he wants me to start at 300 mg or 600 mg at bedtime. The second time I tried neurontin it made me excessively sleepy, but not so tonight. I had a few moments of sleepiness, but other than feeling tired (which I should - I've had about three hours sleep in as many days) I am not too sleepy.
I could not take Lyrica (for me a Dr. Jekyll and Mr. Hyde type of drug) but neurontin (gabapentin) is the precursor for Lyrica and can be used for nerve pain. I took 300 mg at 7:30 and waited until 9:00 to take the second 300 mg. I am very very very nauseous. I will take some phenergan soon if I can keep it down.
Neurontin so far has taken away most of the burning pain in The Legs and almost all of the pain from touch. The pelvic pain is still bad, but about an hour after the second dose I quit having the leg jitters from pain. I was actually able to get up and push a swiffer mop around the kitchen without a lot of pain, which is the best it has been in months and months.
I am noticing my left eye is turning in - which it does when The Headache is bad. The first 300 mg did rile up The Headache but I turned up the amps on my occipital stimulator and have been able to buzz it down a notch or two. The Headache is not really happy, and I want to always keep The Headache happy and asleep!
I did not expect neurontin to effect my digestion, but it seems to have increased my intestinal motility - which is not a good thing for me, as I process food too quickly anyway. The first 300 mg took a tiny bit of edge off the pain but I still was having severe pain in my legs and pelvic region. The second 300 mg really worked better for the pain, but that is when the nausea started. Now three and a half hours from the first dose and two hours from the second dose my eyes are acting really funky like they can't stay looking at something very long. I keep having to blink and redirect the eyes. Hoping this is just temporary and will wear off. The pelvic pain is still there, a little less than it was which is a blessing. I don't feel very coordinated and feel a little short of breath. Hoping this is temporary also. I really need a pain solution that does not include narcotics. The Headache and The Belly absolutely refuse to cooperate with narcotics.
I saw my immunologist Dr. Calm today. I am off the cyclosporin. Yeah!! He told me that my hives may not be connected to the mammalian meat allergy. Bummer. I asked him if anaphylaxis from the mammalian meat allergy could cause pancreatitis. The first acute pancreatitis attack I had was about six hours after I ate two or three Slim Jims for lunch because I was running errands on my lunch hour.
I have a definite appointment with Dr. Kildare on Wednesday Jan 5th at 1:00. My PCP said Dr. Kildare did call and talk with him about pain treatment options, which is the "why" for the neurontin. At this point, I don't care what I take, as long as it works.
I feel right now like my lips are swelling and my nose is swelling and having a bit of trouble with wheezing. Good heavens, I surely can't be allergic to neurontin. My eyelids are itching, and my ears feel hot. Better sign off, and take some antihistamines. Maybe I ate something or took something OTHER than the neurontin to do this?? I did have some real butter with my low fat meal this evening. Arrrrrgh. And now The Headache is starting to spike forward through my brain from the back and come out above my left ear.
Can you run away from your body??? Wish I could!!! Gonna antihistamine up and hope it helps!!
