Showing posts with label Rare Disease Day. Show all posts
Showing posts with label Rare Disease Day. Show all posts

Monday, February 28, 2011

Too Sleepy

Driving is Difficult

Went to work today for a half day.  Yeah!!!  I would have had MORE than four hours work but it took me over two hours to drive my normal 45 minute commute.  I would drive a couple of interstate exits, and then I would have to pull off and sleep, then drive a couple more, and then pull off and sleep.  Not entirely safe, although I felt I was able to judge the amount of sleepiness (I have had this problem before) and quit driving as soon as sleepy thoughts were crossing my mind.  Going home I did not have this problem. Hoping tomorrow will be better.

My mom refuses to go to the doctor and she feels fine today so convincing her is even harder.  I give up.  I will wait for another time or other symptoms and see if I can get her to go THEN. Arghhh!

We had our weekly television viewing of Antiques Roadshow this evening.  I don't know what we find so fascinating about that show, but it is the one television program we all enjoy watching.  It is much more interesting to watch it in a group for some reason.  We discuss different objects and comment about them like "I don't care how much that is worth, I wouldn't have it in my house" as if we have the type of home where you hang $100,000 paintings over the fireplace.

The duragesic patches are here to stay unless I have some drastic side effect that I can't anticipate.  I know that the patch is part of my sleepytime problem.  One of my bosses suggested I try working from home using Skype.  Hadn't thought of that.  Hoping my internet service stays up reliably so I can give this a try.  My pain levels are up tonight but that is after three days in a row of increased activity, so bring it on I say!  I'm so glad to get out and do something productive today. 

Am hoping for two days in a row for getting to work. I'll be WooHoo'ing big time if I get that done tomorrow!

Today is rare disease day, and The Mastocytosis Society put together a really good video of what it means to have a rare disease, particularily Mastocytosis and mast cell disorders.  I seem to have more than my share of strange, rare or unusual diseases so I am celebrating today as a good day to be alive!