tag:blogger.com,1999:blog-8814235039372544528.post2286084939160375878..comments2023-08-07T03:06:34.682-05:00Comments on No Extended Warranty: Winny Big FaceWinnyNinny PooPoohttp://www.blogger.com/profile/13237156887425609665noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-8814235039372544528.post-90818377385026819682011-01-12T11:07:58.150-06:002011-01-12T11:07:58.150-06:00An addenda for anyone looking this up: I found th...An addenda for anyone looking this up: I found that I had a delayed anaphylactic reaction to a hamburger I had eaten about 6 hours earlier. This is a sign (I know now) of a mammalian meat allergy.<br /><br />I may still have mastocytosis or MCAD, I may still have autoimmune urticaria, but I also have an immune response to "alpha-gal" a sugary carbohydrate present in most mammalian meat products. There is a simple blood test you can take to see if you have this allergy.<br /><br />I have a link on the left to the University of Virginia Website where they talk about this allergy. For me this explains the "idiopathic anaphylaxis" I kept experiencing!!!WinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-11012421601112690932010-11-01T17:23:51.718-05:002010-11-01T17:23:51.718-05:00trec-r: Thanks for stopping by. I pray you never...trec-r: Thanks for stopping by. I pray you never need to use an epipen on your son too! The doses for children are of course much smaller.<br /><br />There is also the TMS discussion group on Yahoo.<br /><br />Here's a list (and of course there is the mastocytosis society website)<br />mastomama has mastocytosis, as do her two children - so she has the perspective of a patient AND a mom dealing with this illness!<br /><br />http://jenniewrendesigns.blogspot.com<br />http://mastomama.blogspot.com<br />http://gypsyprincessa.blogspot.com<br />http://dmlsexton.blogspot.com<br />http://freudianslipsincreativewriting.blogspot.comWinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-83383625049401136592010-11-01T16:30:23.879-05:002010-11-01T16:30:23.879-05:00Thanks for posting this blog. I pray that we neve...Thanks for posting this blog. I pray that we never have to use our epipens with our son. Do you know of any other mastocytosis related blogs? I am making a list for a website my wife and I just started http://mastocytoma.orgUnknownhttps://www.blogger.com/profile/09042005104383550673noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-60900875994065583922010-10-30T07:06:21.508-05:002010-10-30T07:06:21.508-05:00Emily: Better today, still hivey!
Lester: I DO ...Emily: Better today, still hivey!<br /><br />Lester: I DO think Wild Turkey in the IV would be a great improvement! Do they come in margarita too?? Thanks for the prayers!<br /><br />Migrainista: I certainly don't feel brave. This one scared the peewaddins out of me!<br /><br />JBR: Thanks for the hugs!<br /><br />Princess OEATS: Thanks! Appreciate all the prayers! I think I'm gonna call a strike on my body - so it will behave!<br /><br />MP: Yep sometimes those docs know what they are talking about!!!WinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-34411827844983820182010-10-30T06:28:21.210-05:002010-10-30T06:28:21.210-05:00I'm so glad you are ok and were able to follow...I'm so glad you are ok and were able to follow the good sense of your doctor to not second guess yourself. Take care of yourself; there is only one you.MigrainePuppethttps://www.blogger.com/profile/17678393922494152377noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-88496228270727615142010-10-29T18:05:37.064-05:002010-10-29T18:05:37.064-05:00I am adding my prayers to all the others. Girl pl...I am adding my prayers to all the others. Girl please be careful and take care of yourself!Princess of Everything (and then some)https://www.blogger.com/profile/15389182962616830610noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-23478670813922438772010-10-29T17:37:28.266-05:002010-10-29T17:37:28.266-05:00More hugs to you.... (((((Winny))))More hugs to you.... (((((Winny))))Just Be Realhttps://www.blogger.com/profile/15815210059310140144noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-40227492829341721302010-10-29T14:20:49.888-05:002010-10-29T14:20:49.888-05:00oh my! Winny I pray for your safe travels and your...oh my! Winny I pray for your safe travels and your general well being. You are so brave!Migrainistahttps://www.blogger.com/profile/05473496432554201124noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-1334368042614616692010-10-29T12:37:23.249-05:002010-10-29T12:37:23.249-05:00WOW, have you ever thought about Wild Turkey in th...WOW, have you ever thought about Wild Turkey in the IV. We love you dearly and pray that God will provide some healing and stability in your health.Lesterhttps://www.blogger.com/profile/04803204462621370638noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-50057919303536191012010-10-29T11:24:59.513-05:002010-10-29T11:24:59.513-05:00Oh dear, what a night. I'm glad you are feelin...Oh dear, what a night. I'm glad you are feeling better now, and hope that everything will stay closer to normal while you're traveling!Emilyhttps://www.blogger.com/profile/17136475934858797611noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-85692429151373066662010-10-29T04:51:28.791-05:002010-10-29T04:51:28.791-05:00Thanks JBR, I feel safer already!Thanks JBR, I feel safer already!WinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-76316583595058312532010-10-29T04:37:08.240-05:002010-10-29T04:37:08.240-05:00Dear Lord I pray that you protect Winny as she tra...Dear Lord I pray that you protect Winny as she travels. That all aliments do not attack her at this time while away. Asking that the pain, hives her whole condition be restored to perfect heath in Jesus' name, amen.!Just Be Realhttps://www.blogger.com/profile/15815210059310140144noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-58202943199040586672010-10-29T02:49:45.165-05:002010-10-29T02:49:45.165-05:00Steph: Still awake = too much epinephrine! Kinda l...Steph: Still awake = too much epinephrine! Kinda like way way WAY too much caffeine.<br /><br />The finger gash really didn't hurt - not as much as them diving in and digging for a vein that runs away as soon as a needle heads for it.WinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-55777021889279557592010-10-29T02:26:31.602-05:002010-10-29T02:26:31.602-05:00What an experience. I'm glad you're okay! ...What an experience. I'm glad you're okay! <br /><br />The finger gashing technique sounds uncomfortable, but I'm going to keep it in mind next time I'm getting stuck over and over and over and over.stephhttps://www.blogger.com/profile/10376314727233594908noreply@blogger.com