tag:blogger.com,1999:blog-8814235039372544528.post1482389599058504446..comments2023-08-07T03:06:34.682-05:00Comments on No Extended Warranty: Occipital Stimulator Surgery ScheduledWinnyNinny PooPoohttp://www.blogger.com/profile/13237156887425609665noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8814235039372544528.post-55644880883954289362009-06-09T10:23:38.887-05:002009-06-09T10:23:38.887-05:00Deborah: Sorry to hear that you are at the end of...Deborah: Sorry to hear that you are at the end of the medication road also.<br /><br />The trial stimulator they installed about a month ago gave me some relief, and allowed me to control the pain - where I can only work a few hours now without very bad pain, I was able to "crank up" the voltage and keep on going at acceptable pain levels. I am told the permanent implant works better than the trial one. I get the permanent implant installed June 30th, and since I am participating in a blind study neither I nor my surgeons will know if I get a stimulator that works until after it is done. One out of three stimulators used in the study is a non-working model or dud. I'm praying I get a working one not a "dud"!!! This is a study for ANS stimulators/St. Jude Medical.<br /><br />I have several links under headache resources about stimulators - its sorta the end of the road recommendation that seems to work for some and not others. Occipital nerve blocks did not work for me, but the stimulator did for the week I had the trial. I believe I still may need medication but hopefully at levels where my body will tolerate it. <br /><br />I pray that you find an snswer that works for you. I'm in a study because my insurance company refused to pay for a stimulator because they are still considered investigational for headache, and I lucked out by getting a doctor who was participating in a study and thought I could benefit!<br /><br />I'm still not completely sold on the stimulator because it seems too good to be true and have been disappointed too many times, but I don't want to spend the rest of my life in this kind of pain either. I prefer to live life on my own terms, and hope that the stimulator will give me some control back!!!WinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-82157777514503111782009-06-09T06:39:14.197-05:002009-06-09T06:39:14.197-05:00I'm sorry about your Aunt. On the stimulator,...I'm sorry about your Aunt. On the stimulator, I'm curious; as I have uncontrolled migraines and cannot take triptans, DHE or several other medications that treat migraines. Now my only pain med I was taking failed me. I do receive cryoanalgesia and trigger point injections, as well as good old hospitalization and infusion. Now my docs are looking into the stimulator. I've also been around the block to a few headache hosp. Has the "dud" worked for you?deborahhttps://www.blogger.com/profile/14721035825751703244noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-41274572937482063682009-06-07T22:07:42.427-05:002009-06-07T22:07:42.427-05:00The service was brief but very personal. I think ...The service was brief but very personal. I think the lady who delivered the service did a great job!WinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.comtag:blogger.com,1999:blog-8814235039372544528.post-29319412597524966112009-06-06T15:49:01.411-05:002009-06-06T15:49:01.411-05:00Sorry to hear about your aunt. She's sounds aw...Sorry to hear about your aunt. She's sounds awesome. A life well-lived is always something to honour.Suehttps://www.blogger.com/profile/03407981987874669303noreply@blogger.com