Friday, January 30, 2009
Again to the Emergency Room
Tried hard today to manage The Headache, but it bested me at about noon. I had taken all the Benadryl and phenergan that I thought was safe, and The Headache was not backing down. It is never a good sign when I can't sleep in the middle of the night due to The Headache.
My brother Phil was kind enough to take me to the Emergency Room in Springfield. I tried to just get by with a shot of Toradol, but The Headache wasn't in the mood to cooperate. I then was given IV Fentanyl, and it backed off The Headache just a hair, and seemed to make it quit surging forward.
I'm back home, The Headache is still going strong, but I'm hoping that it will stay at this level for the rest of the night. I'm not sure how strong Fentanyl is, but the pain relief didn't really last very long. It's better than no pain relief at all that's for sure! I'm praying really hard that the Toradol isn't becoming less effective. It's been my lifeline for the last 12 months.
There were a slew of banged up folks at the ER. Apparently the ice storm is taking its toll in bruises and broken bones. Not a good time to be walking on ice if you don't have Yak Traks to put on your shoes!
Wednesday, January 28, 2009
Sunday, January 25, 2009
My brain feels bruised - wish I could rub some liniment on it to make it better...
Saturday, January 24, 2009
Friday, January 23, 2009
Tuesday, January 20, 2009
Monday, January 19, 2009
The Headache Wins Today
Bad day all around - woke up with pain got worse - couldn't get warm - just shivering and couldn't sit still for The Headache makes me jittery. Different than migraines where I want to be as still as possible - the pain just makes me want to move.
Thank god, got right in at Dr. D's office, got injection of 60mg Toradol, 25 mg Phenergan, and 50 mg Benedryl - my usual cocktail for The Headache. Slept most of the day. Dr. D said I'm becoming disabled from the pain, and I agree. He did say the Cleveland Clinic is an excellent healthcare institution, and I should get my doc in Kansas City to get moving on the referral.
The Headache is wearing me down - I feel my pain threshold becoming lower and lower, or else The Headache is worsening. I think it is the threshold, I am also developing anxiety about going into the extreme levels of pain with The Headache. I would do almost anything to keep from going to 9 or 10 on my personal pain scale, yet when The Headache decides to go there I can't stop it.
The Emily pain scale (it is somewhat like the Richter Scale for earthquakes or the Fujita scale for tornados so the intervals get progressively worse between steps) goes like this:
Scale 0-10, with 0 pain free 10 unbearable:
0 No pain - haven't been there in a while
1 - 4 Not worth mentioning pain - 4 is generally where I dwell on my good days.
5 - 6 Better do something quick pain or I'm in trouble - photophobia nausea starts
7 - 8 Hurting pretty badly starting to get jitters will progress quickly dizziness
9 Crying, can't sit still, usually vomiting, keep repeating O God! Panic
10 Can't move, just shaking vomiting crying - extreme pain. Dilaudid only help.
The headache still here this evening - when from 8 to 6, now back to 7. Will try to sleep this evening. Hope to go to work tomorrow - we will be shorthanded. I feel like a big whiner (or is that weiner, or maybe winner - nope not winner, maybe loser) because there are people with much worse ailments out there.
I am extremely dizzy and nauseous and The Belly has been talking - the Toradol injection seems to upset it in addition to the indomethacin pills. Both my headache doc and Dr. D say that the IM injection should hurt it less, but I think The Belly was just feeling neglected today - haven't eaten anything all day...
Ahhh well, tomorrow is another day - it should be better!
Sunday, January 18, 2009
Thursday, January 15, 2009
Tuesday, January 13, 2009
Friday, January 9, 2009
Thursday, January 8, 2009
Wednesday, January 7, 2009
Tuesday, January 6, 2009
It's pitiful that my idea of a long day at work is from 9:00 in the morning to 2:00 in the afternoon. Where is the woman that was able to work 20 out of 24 hours, then turn around and do it again??
The Headache is at it again today, creeping out of the shadows to ruin my day. I had a good day at work - accomplishing a lot. That seems such a rarity for me nowadays, so I was glad to feel useful.
The pancreatic enzymes make me more nauseous than I already am. Hopefully this is a side effect that will disappear as I get used to them. So far, they are not helping the pain very much - but I am exceedingly gassy. I'll have to get someone to hang on to my tether ropes so I don't float away, I'm that gassy.
To top my day off, I got a speeding ticket today - 43 in a 30 mph zone! Just wasn't paying attention - when The Headache starts working on me, I get a little absent minded...guess this is a reminder not to drive when The Headache is in charge...
Monday, January 5, 2009
I told my nieces that I am going to have a Pancreas Party when I get this thing working right - the way its going it will be a couple of years.
Sunday, January 4, 2009
We were visted yesterday and today by a hoard of great-nephews and a niece and an ex-sister-in-law who is now my first cousin (don't ask it's too confusing to explain!). The boys flowed through the house like a river of fish, taking different streams everytime they went from the front door to the back!!!
Their grandpa (my brother) took them to a movie today, and one stayed behind and played Playstation games all the while the rest were gone. They were all good boys and hopefully had a really good last weekend for their vacation. For all of them, school starts tomorrow! I found a picture of one of them - Trenton - but they all four were equally cute!
I didn't have to cook for them, as we had pizza yesterday and grandpa brought sandwich fixin's today. Thank goodness, because great-grandma and I are tired old ladies and keeping up with all the comings and goings was plenty enough for us. I can see why child-rearing is for the young and spry! Their momma/aunt and grandma kept pretty good track of them - it's just that we aren't used to all that quick movement!!
Note to self on the pizza: Don't think the pancreas likes pizza yet - remember not to try to eat any for a few weeks! Another broken part, another piece with no extended warranty!
Friday, January 2, 2009
Today was "headache day" - I have bad days every three to four days from a headache condition called hemicrania continua. I came home early and took some benedryl and phenergan to help stomp down the headache. I was trying to nap the rest of the day away, socked out on the couch with my pup Augie keeping watch, when what happens but the phone rings!
How is it that everytime I try to catch some winks in the daytime, the telephone rings??? I'm not too grumpy because it was a call from a friend, but the headache proceeds on unabated by anything....
The Headache (I think of it always in capitalized letters) has ruled my life for a little over a year now, and the only medication that works for it is adversely effecting The Belly. When your warranty is out, and no extended warranty is available - your parts start failing in bunches....
Thursday, January 1, 2009
My family and friends are hoping for a better 2009 than the last few years. Our aging bodies are breaking down too quick to fix, and I'm afraid the pieces to fix us are in short supply.
I am looking forward to seeing what the new administration has in store for us with respects to healthcare reform. If my family and friends are any indication, most middle class Americans are just one illness away from disaster.
Other countries provide care for their citizens without the maze of regulations and beauracratic barriers we are so good at. How much cost is added to healthcare just to support governmental regulations that were intended to reduce cost? As someone once told me, who's drivin' the bus??